tag:blogger.com,1999:blog-49227656898844074342024-03-13T22:13:35.796-04:00one day at a time~the piche 6 pursuit of happiness~Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.comBlogger856125tag:blogger.com,1999:blog-4922765689884407434.post-71767309033959536712014-02-15T09:41:00.002-05:002014-02-15T09:41:25.009-05:00In other tooth news...Darcy's lost four teeth in one week!<br />
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Apparently, lost is not the right word to use...<br />
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She has been wiggling anything remotely jiggly to make pulling them out easier...<br />
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All to make more money!<br />
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We advised that she best find another way to make money or soon she'll only be only able to eat soup!Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com1tag:blogger.com,1999:blog-4922765689884407434.post-44141673640151856072014-02-13T21:37:00.001-05:002014-02-13T21:37:17.499-05:00Tooth!Second top tooth is through!!<br />
Hooray!Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com0tag:blogger.com,1999:blog-4922765689884407434.post-9125380817647238062014-02-11T21:42:00.000-05:002014-02-13T21:42:30.901-05:00Peanut Butter Cup<div class="separator" style="clear: both; text-align: center;">
Darcy got this in her Christmas stocking.</div>
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<a href="http://3.bp.blogspot.com/-i5z2G0vzKrY/UvL03CNd0OI/AAAAAAAAD44/ezfYtRwW4OY/s1600/jan+054.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://3.bp.blogspot.com/-i5z2G0vzKrY/UvL03CNd0OI/AAAAAAAAD44/ezfYtRwW4OY/s1600/jan+054.JPG" height="213" width="320" /></a></div>
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It was really quite big.</div>
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<a href="http://3.bp.blogspot.com/-LVM9rkzmml0/UvL1QoUM5qI/AAAAAAAAD5A/-TiHENsorSk/s1600/jan+056.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://3.bp.blogspot.com/-LVM9rkzmml0/UvL1QoUM5qI/AAAAAAAAD5A/-TiHENsorSk/s1600/jan+056.JPG" height="213" width="320" /></a></div>
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It was going to require a really big glass of milk to go with it.</div>
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<a href="http://4.bp.blogspot.com/-WJ0I1a9fI3M/UvL1Q8d3dGI/AAAAAAAAD5E/PWqNw6u07XQ/s1600/jan+058.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://4.bp.blogspot.com/-WJ0I1a9fI3M/UvL1Q8d3dGI/AAAAAAAAD5E/PWqNw6u07XQ/s1600/jan+058.JPG" height="213" width="320" /></a></div>
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Much to her disappointment, we shared it.</div>
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<a href="http://2.bp.blogspot.com/-imBb_d8o2y8/UvL1QyGQz-I/AAAAAAAAD5I/ewItHuLQ_DU/s1600/jan+059.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://2.bp.blogspot.com/-imBb_d8o2y8/UvL1QyGQz-I/AAAAAAAAD5I/ewItHuLQ_DU/s1600/jan+059.JPG" height="213" width="320" /></a></div>
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It was like a mini pie piece!</div>
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<a href="http://4.bp.blogspot.com/-BOZXMbrpTP8/UvL2hHKVSqI/AAAAAAAAD5c/4mu6D3w_16o/s1600/jan+060.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://4.bp.blogspot.com/-BOZXMbrpTP8/UvL2hHKVSqI/AAAAAAAAD5c/4mu6D3w_16o/s1600/jan+060.JPG" height="213" width="320" /></a></div>
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My family was disgusted that I used a fork to eat what essentially was a chocolate bar... It was huge though and I think I enjoyed it more eating it that way. I was able to eat it slower and really savour it without it falling apart and starting to melt on my fingers. </div>
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<br />Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com2tag:blogger.com,1999:blog-4922765689884407434.post-83927440032273270992014-02-06T06:23:00.000-05:002014-02-06T06:23:00.124-05:00Maybe Mom won't notice...<div class="separator" style="clear: both; text-align: center;">
<a href="http://2.bp.blogspot.com/-zrdBqQ8MTW4/UusQNuRWWMI/AAAAAAAAD4E/g7ilG4syde8/s1600/jan+27+001.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://2.bp.blogspot.com/-zrdBqQ8MTW4/UusQNuRWWMI/AAAAAAAAD4E/g7ilG4syde8/s1600/jan+27+001.JPG" height="320" width="213" /></a></div>
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That Monday night that I arrived home from the hospital with Caelan...</div>
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<a href="http://1.bp.blogspot.com/-Cc1WxAHuPdg/UusQlhBdAhI/AAAAAAAAD4M/JzlUb8sjaRg/s1600/jan+27+002.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://1.bp.blogspot.com/-Cc1WxAHuPdg/UusQlhBdAhI/AAAAAAAAD4M/JzlUb8sjaRg/s1600/jan+27+002.JPG" height="320" width="213" /></a></div>
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I found this?</div>
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<a href="http://2.bp.blogspot.com/-_NiP4ytm4pQ/UusQ2JfARYI/AAAAAAAAD4U/vMJRAjB-EQs/s1600/jan+27+003.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://2.bp.blogspot.com/-_NiP4ytm4pQ/UusQ2JfARYI/AAAAAAAAD4U/vMJRAjB-EQs/s1600/jan+27+003.JPG" height="320" width="213" /></a></div>
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ummm... Why is there a hobbit poster in the middle of our hall?</div>
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<a href="http://2.bp.blogspot.com/-Hh3aZbdQFBg/UusRjKRW2sI/AAAAAAAAD4c/hQQnE19HBVU/s1600/jan+27+004.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://2.bp.blogspot.com/-Hh3aZbdQFBg/UusRjKRW2sI/AAAAAAAAD4c/hQQnE19HBVU/s1600/jan+27+004.JPG" height="320" width="213" /></a></div>
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Really??</div>
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So apparently, the story is really funny... </div>
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So funny that it took a while for everyone to stop giggling to be able to tell it to me.</div>
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So funny I'm told that we'll look back on this years from now and still be laughing.</div>
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(I think it was probably nervous laughter, because Momma was not impressed.)</div>
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This all went down that same Monday before I came home with Caelan.</div>
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Damian was home with the girls who both had miserable colds. </div>
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Ry told the story like this:</div>
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<i>It's partially my fault anyway... (giggle, giggle) so... we were in your room and I was leaning across the bed with my feet against the wall, balancing, but the gap was too wide. By the way there is a tiny crack in your wall too. (giggle, giggle) So then Dad and I were in the hallway and he wanted to show how ninja he was and I was saying </i><br />
<i>"</i><i>If 95 lbs. of pure fury can put a crack in your wall, imagine what..." </i></div>
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<i>BAM!</i></div>
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<i>Next thing we knew there was a hole in the wall about the size of Dad's foot.</i></div>
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<i>"Do you think Mom will notice?"</i></div>
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<i>and Dad said </i><br />
<i>"If we put a white piece of paper over it and dim the lights Mom will never notice."</i></div>
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<i>Darcy had the brilliant idea to put the Hobbit poster over it.</i><br />
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Really??</div>
Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com2tag:blogger.com,1999:blog-4922765689884407434.post-5473769628698673512014-02-05T21:04:00.000-05:002014-02-05T21:04:11.522-05:00another pearly whiteRonan's first top tooth has finally cut through...<br />
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Feels like it's been weeks coming since we first saw the outline in his gums...Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com0tag:blogger.com,1999:blog-4922765689884407434.post-48059490762517875872014-02-05T12:53:00.001-05:002014-02-05T12:53:15.199-05:00time is slippingSo many things that I want to blog about... So many pictures to share and stories to tell.<br />
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Time is my enemy, it's just going too fast.<br />
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Time and Ronan, who thinks it's his mission to pull every cord that's attached to the computer, push all the buttons, empty every cupboard and drawer, clean off any surface within reach. <br />
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All boy that one. Busy to the extreme. Full of energy. Most of the time, happy.<br />
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Which means limited computer access for Mom = no blog posts.<br />
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Hoping to catch up soon...<br />
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<br />Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com2tag:blogger.com,1999:blog-4922765689884407434.post-12338687428792265032014-02-03T21:30:00.000-05:002014-02-05T21:33:25.587-05:00Cupboards<div class="separator" style="clear: both; text-align: center;">
Ronan has decided that I should reorganize our tupperware cupboard everyday, sometimes two or three times!</div>
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<a href="http://2.bp.blogspot.com/-zUjjO7yIf5I/UvLwNSykVaI/AAAAAAAAD4s/S-LEvFhc5iU/s1600/jan+27+011.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://2.bp.blogspot.com/-zUjjO7yIf5I/UvLwNSykVaI/AAAAAAAAD4s/S-LEvFhc5iU/s1600/jan+27+011.JPG" height="266" width="400" /></a></div>
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I really shouldn't complain because this is one of the only cupboards that I let him in to. Under the sink is child locked because of the garbage, dish soap and dishwasher detergent. I've also locked the pantry cupboard since he was pulling large bottles of olive oil and other heavy stuff off the shelf and I was afraid he'd hurt his toes. The other cupboard that's locked has the kids colouring books, paper, pencils, pens, crayons, glue, markers, stickers, etc., in it. He does have access to the tupperware, pots and pans and the cookie sheets in the oven drawer.<br />
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It used to be that we only had to worry if one of us left a cupboard open, but my boy is smart. He's figured out that he can pull himself up against the cupboard door and then use the handle to open the door just like everyone else!<br />
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He's even mastered moving the computer chair out from in front of the computer cabinet so that he can open it up the same way. Now there's a child lock there too. Unfortunately, I'm still trying to teach him that he's not allowed to get at all the cords behind the computer. He's unplugged the internet more than once. Now I'm trying to rearrange furniture so the cords aren't so accessible.<br />
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He's a little bundle of trouble. Busy, very busy. Full of mischief. All boy.Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com3tag:blogger.com,1999:blog-4922765689884407434.post-87461356964225137802014-02-01T21:51:00.000-05:002014-02-01T21:51:00.064-05:00my guys<div class="separator" style="clear: both; text-align: center;">
<a href="http://4.bp.blogspot.com/-dVOzeFG327E/UusPgTCAbuI/AAAAAAAAD38/T_MwfK3nPyo/s1600/ipad+Jan+2014+022.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://4.bp.blogspot.com/-dVOzeFG327E/UusPgTCAbuI/AAAAAAAAD38/T_MwfK3nPyo/s1600/ipad+Jan+2014+022.JPG" height="300" width="400" /></a></div>
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Just love this pic, xo.</div>
Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com1tag:blogger.com,1999:blog-4922765689884407434.post-91307193318397853372014-01-31T10:30:00.000-05:002014-01-31T10:30:01.627-05:00Blast off!<div class="separator" style="clear: both; text-align: center;">
<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dxdGyenTFtQ7GDeAjT2Ac2ZqPksxUkb5OD1SfaprqkwT5ljSFmBo43YE5E3KSETCqJSd_e3yi2QedZSmrQ7Sg' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>
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I took this video of Caelan while he was in the hospital. Obviously he was feeling better! <br />
I was a little slow on the take though... I think I missed ten and I stopped it before the blast off!!Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com0tag:blogger.com,1999:blog-4922765689884407434.post-78391738380060479392014-01-30T14:40:00.000-05:002014-01-30T14:40:10.356-05:00Conversations overheardRy: What's that french thing called? ... That thing where you put a person's head in it, then you pull a string, some giant ax thing drops and the person's head comes flying off?<br />
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Dad: A guillotine<br />
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Darcy: I thought it was a baguette, that's french too!Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com2tag:blogger.com,1999:blog-4922765689884407434.post-4994268717521712222014-01-29T07:00:00.000-05:002014-01-29T07:00:01.642-05:00QUACK!Throughout this most recent CHEO visit, from our first step into the emergency room until we left, Caelan was full of ducks.<br />
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That's right. Ducks.<br />
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-XjMVgYfPw68/UuhtJ5-ydqI/AAAAAAAAD3U/ANYCvSbQvg0/s1600/baby-duck.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="http://3.bp.blogspot.com/-XjMVgYfPw68/UuhtJ5-ydqI/AAAAAAAAD3U/ANYCvSbQvg0/s1600/baby-duck.jpg" height="300" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><a href="http://www.stanford.edu/dept/CTL/cgi-bin/academicskillscoaching/wp-content/uploads/2012/07/baby-duck.jpg" target="_blank">Source</a></td></tr>
</tbody></table>
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Every single time a doctor, resident, med student, respiratory therapist, nurse used a stethoscope to listen to Caelan's lungs, he quacked.<br />
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-MCqYZwtRR8U/Uuhtm7Ioi_I/AAAAAAAAD3c/MIY-OQr47Z4/s1600/600px-White_domesticated_duck,_stretching.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="http://1.bp.blogspot.com/-MCqYZwtRR8U/Uuhtm7Ioi_I/AAAAAAAAD3c/MIY-OQr47Z4/s1600/600px-White_domesticated_duck,_stretching.jpg" height="400" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><a href="http://commons.wikimedia.org/wiki/File:White_domesticated_duck,_stretching.jpg" target="_blank">Source</a></td></tr>
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Sometimes the QUACK! was loud.<br />
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Other times, when you thought he might be sleeping, it was barely a whisper.<br />
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Sometimes the duck had cows visiting and you'd hear a moo too.<br />
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Sometimes he'd have the most serious straight face and you'd wonder if you actually heard it.<br />
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Other times he'd be grinning ear to ear or slapping a hand over his humongous smile to hide it.<br />
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-qPTWJNjF0TM/Uuhug6jNtaI/AAAAAAAAD3s/wzWOMSSyrdw/s1600/Mallard2.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="http://3.bp.blogspot.com/-qPTWJNjF0TM/Uuhug6jNtaI/AAAAAAAAD3s/wzWOMSSyrdw/s1600/Mallard2.jpg" height="303" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><a href="http://en.wikipedia.org/wiki/Duck_test" target="_blank">Source</a></td></tr>
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Apparently word got around about the ducks in Calean's chest... Sometimes new doctors or nurses would come in and before listening would ask themselves aloud "wonder if I'm going to hear any ducks in here?" That usually got a big grin. Or they might have asked Caelan if there were still ducks in his chest, to which he'd respond with a QUACK!<br />
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/--9GNs6AtSxM/UuhuKkT_vsI/AAAAAAAAD3k/hpcEWtpLHCM/s1600/Duck.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="http://1.bp.blogspot.com/--9GNs6AtSxM/UuhuKkT_vsI/AAAAAAAAD3k/hpcEWtpLHCM/s1600/Duck.jpg" height="300" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><a href="http://stoneyroads.com/2013-year-duck-dance-music/" target="_blank">Source</a></td></tr>
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I have no idea why he did any of this, but it made me smile every time. <br />
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It helped make the stay a little more bearable...Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com2tag:blogger.com,1999:blog-4922765689884407434.post-19368730811051147802014-01-28T21:38:00.003-05:002014-01-28T21:38:51.437-05:00frustratingI was so looking forward to a good nights sleep last night but it just wasn't meant to be... <br />
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In some ways it kind of made me happy, because it only reflected once again how long we've gone without a sleepover at CHEO.<br />
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Throughout this entire stay at CHEO, either Damian or myself were calling the nursing agency and cancelling our night shift nursing for that evening and when applicable the school nursing for the following day. Sometimes we'd cancel for the following day's night shift too. We really weren't sure how long his stay was going to be so never went much beyond that. <br />
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Regardless of when we called, we were always able to talk to a real live person.<br />
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It wasn't until just after ten o'clock last night that it occurred to me that perhaps we should have called to ensure we had a nurse for the night... <br />
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I did call then. <br />
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Again, I got to speak to a real person.<br />
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This time, however, they inform me that CCAC had placed a hold on the nursing shifts because Caelan was in hospital. They hadn't recevied a call advising that he had been discharged so there was no nurse scheduled for the night.<br />
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I forgot all about that. <br />
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(See? Kind of a happy thing, when you forget all these details about hospital stays. Kind of.)<br />
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How frustrating!<br />
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Even more frustrating is that we'd spoken to the nursing agency at least four times during this hospital stay. I repeat, each time speaking to a real live person. Never once did they say, "oh yes, I see there's been a hold placed on services while he's in hospital." Heck, even a cranky "ya, CCAC put a hold" would have been appreciated. It would have been enough to remind me of all the paperwork processes that impact every one of Caelan's hospital admissions/discharges.<br />
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All I'm saying is that a gentle reminder would have made a world of difference. <br />
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You can bet that first thing this morning I was making my phone calls.<br />
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Tonight we have nursing... and I'm really looking forward to sleeping in my own bed!Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com1tag:blogger.com,1999:blog-4922765689884407434.post-60362584807480351272014-01-27T21:50:00.001-05:002014-01-27T21:50:36.647-05:00back under one roofCaelan was discharged from CHEO today.<br />
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An ENT med student came by this morning and returned around lunch time with Dr. B. Apparently they (ENT) agree there is a bit of a curve in the trachea visible in the x-ray that they don't see in previous x-rays. They checked back 5 years. The scope they did Friday didn't really clarify the situation either. About a month from now we'll do a follow up in clinic to discuss the probability of an bronchoscopy under sedation in the spring. It's possible that it was just his positioning during the x-ray so no need for concern yet.<br />
<br />
At the same time, knowing that checking Caelan's ears and mouth are going to be part of the discharge assessment done by the floor, I asked Dr. B to check them. If I have to make Caelan go through that again, I'd rather have someone who knows exactly what they're doing check. Funny, Dr. B didn't mention anything about funny curved ear canals? Caelan's ears are not infected. There's no redness, but there is some fluid. Just something to keep an eye on. We'll mention it at the clinic appointment and if it's still there we can consider putting tubes in his ears during that bronchoscopy in the spring.<br />
<br />
So... We're all home now. Ronan, Darcy and Ryland all have miserable colds. Probably all RSV. Really hoping that Ronan is strong enough to get through it without ending up at CHEO too! There were lots and lots of babies there having a hard time breathing through lots and lots of secretions. In Caelan's ward room there was a 15 month old, a 9 month old and an 11 month old, all with RSV!<br />
<br />
Caelan is better. It's such a relief and so good to see. He's not 100% though. I'll be keeping him home from school tomorrow (against his wishes) to see how he copes with some activity since he's been lounging out in a hospital bed for 5 days. I think he's going to tire out pretty quickly... Hoping he'll surprise me!Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com1tag:blogger.com,1999:blog-4922765689884407434.post-91017019171309741372014-01-26T21:11:00.001-05:002014-01-26T21:11:11.587-05:00Good newsCaelan is feeling worlds better.<br />
<br />
We've gone over 24 hours without any kind of oxygen or treatment which is the prerequisite for going home. <br />
<br />
Unfortunately earlier in our stay there was some concern about the look of his trachea in the X-ray and ENT was consulted. They came and scoped down his trache and had no concerns. At the time they just wanted to let us know they were aware he was here and would basically just be in the background. I repeat they had no concerns but said (and documented in his chart) that they'd check in again on Monday.<br />
<br />
Now they won't discharge Caelan until ENT signs off.<br />
<br />
So we're still here for at least one more night.<br />
<br />
<br />Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com2tag:blogger.com,1999:blog-4922765689884407434.post-7702044385195632732014-01-25T21:07:00.001-05:002014-01-25T21:07:40.729-05:00Update...If you've read the last post detailing our adventures to get to the floor then you understand that Caelan was extremely tired on Thursday. We continued with the ventolin treatments throughout the day fairly regularly. Not every hour, but probably close to every two hours.<br />
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Thursday night was a bit better. Four ventolin treatments and a couple of saline nebulizers to loosen up the secretions in a twelve hour shift. A little less oxygen support was required. Only concern was that he spiked a fever twice overnight.</div>
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Friday Caelan was well rested and he seemed a bit more himself. He was able to spend the entire day off oxygen with a ventolin/saline treatment at 7:30am and another at 4pm. He kept his sats in the 90s without a problem. However as the day wore on you could tell he was getting tired and by bedtime (8-8:30) we needed to put the oxygen back on. He stayed on the oxygen at the lowest possible setting all night.</div>
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Friday overnight was much like Thursday's, four ventolin treatments and a few saline nebulizers, along with running a temp. </div>
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Today, our Master Caelan has returned, full of all his usual spunk and attitude. Personality plus with a sparkle in his eye! Once again he's been off the oxygen all day and has required no treatments at all.</div>
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He seems to be fighting this RSV thing, however a swab they took of his trache site grew three different bacteria. This doesn't necessarily mean an infection. The bacteria could be colonised and not causing any illness. The three bacterias found were; </div>
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<ol>
<li>Streptococcus pneumoniae</li>
<li>Pseudomones aeraginosa</li>
<li>Haemophilus influenzae</li>
</ol>
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Yah, I made the doctor write those down for me and I'm still not sure I got them correct! Google helped a bit with the spelling...</div>
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<br /></div>
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They were concerned that maybe one of those bacterias found could be causing an infection that was resulting in this fever that keeps returning. Or could it be that he has an ear infection? Or urine infection? Or pneumonia? Or it could be just the RSV? Anybody else have a guess?</div>
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We went through the torturous experience of checking his ears again. I hate to say it, but again with a med student. (Insert eye roll here.) Apparently the canals in Caelan's ear are curved in such a manor that its extremely difficult to see far enough in to determine if there's an infection. From what they could see there was no redness. All that for inconclusive results.</div>
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For now, we remain antibiotic free. </div>
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We're just going to keep a close watch on those mysterious fevers...</div>
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Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com0tag:blogger.com,1999:blog-4922765689884407434.post-63405571495115747412014-01-24T22:27:00.000-05:002014-01-24T22:27:00.796-05:008pm Wednesday to 4am ThursdayWarning... This will be a bit of a rant. Consider yourself warned.<br />
<br />
Eight p.m.<br />
<br />
Caelan usually goes to bed around eight o'clock. <br />
<br />
Wednesday night we were still in an emergency room at that time.<br />
<br />
Caelan was depending on oxygen to keep his sats in the 90s and was getting ventolin treatments hourly.<br />
<br />
He was exhausted not only because it was bed time but also from working so hard at breathing.<br />
<br />
We were told he was being admitted around this time, yet it took until about 4am Thursday before he was in a bed on the floor. I think this is ridiculous.<br />
<br />
I understand that going into the emergency room, this is a medical emergency situation and he'll need to be assessed and tests will need to be done. At this point though, we already have a diagnosis and treatment in place.<br />
<br />
Yet the doctors from the floor he's being admitted to, need to do their own assessment of him. This involves them asking me all his medical history (as his mother I'm able to summarize the seventeen odd volumes they have on him) that I've already given the emergency department. GOOD NEWS ALERT! We've been out of here so long I don't remember all the dates anymore!! This makes me very happy!!<br />
<br />
They come in as a team, one physically <span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969);">checking </span> Caelan while the other starts the 'Spanish Inquisition'. Then the second resident will also physically assess him. In case you were unaware Caelan is not a big fan of being assessed. It involves them listening to his chest and back, tapping his tummy, looking for rashes, checking in ears, eyes, and mouth. Those last three, not happening because he's fighting them on it in true Caelan fashion. Especially after ten o'clock at night.<br />
<br />
<span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875);">Anyway, part way through the floor's assessment they think it might be wise to have the ICU look at him. Hands off until that's done, oh but they want him to get an IV in the interim. (So not so hands off...)</span><br />
<span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875);"><br /></span>
<span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969);">Caelan finally falls asleep around eleven.</span><br />
<br />
<span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969);">They come to put the IV in around eleven thirty. He's pretty tolerant of them looking for a good vein, but loses it once they get down to business. After two failed attempts they're gone. </span><br />
<span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969);"><br /></span>
<span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969);">Now it's after midnight and he's worked himself into a bit of a state with all the IV nonsense. I just get him back to sleep when the ICU team arrives for their assessment.</span><br />
<span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969);"><br /></span>
<span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969);">They actually say the right things. There's no indication that he needs to go to the ICU. He looks rather peaceful sleeping although it's still apparent that he's working hard. The icing, they agree that there's no need for an IV at this time. Have I mentioned that I LOVE THE ICU!!! The level of care and support there is above and beyond, and unfortunately it puts a huge shadow on the rest of the hospital.</span><br />
<br />
They can only pass on their suggestions to the Emergency Department. While they are doing that another nurse comes in to attempt IV access. With my glacial Momma Bear stare I inform her that she can look for now. When she thinks that she's found something I let her know that I'm hoping the plan has changed and that there's no need for an IV at this time. He is tolerating feeds to remain hydrated and there's no sign of pneumonia requiring antibiotics, therefore no IV. I was ready for a fight and was happy when I didn't have to go into full force battle, they'd taken the ICU's advice and scrapped the IV.<br />
<br />
Now the floor residents return to complete their assessment. Those fools thought they might be able to get a look in Caelan's ears while he was sleeping. It's 2 o'clock in the morning. He was so ticked that he was taking swipes at them in his sleep, and I let him. I was about to lose it. Then they tried between the two of them to hold him down and even asked the nurse for help restraining him when I had had enough. I asked if this really needed to be completed at 2 o'clock in the morning? I asked what difference a few hours would make if they could just wait until later in the day, a more reasonable time. "OH but Mom if he's brewing something that would be almost xx hours lost when we could have been fighting the infection..." I tried to get it through their heads that even if they'd tried twelve hours ago in the middle of the day when he was more "willing" it would have been next to impossible. How do they do it in clinic they ask... Well it often takes a team of us to hold him down and we risk him going blue on us while he breath holds and other times it just DOESN'T HAPPEN!!! But if it's so damn important to you, get the hell out of my way and get your hands off my sick exhausted child and make it quick! I got Caelan on my lap and am attempting to get him in a position where I can hold him still for their most necessary examination and they can't keep their hands off him. Oh Momma Bear is not pretty, take my word for it. HANDS OFF AND WAIT ONE MINUTE PLEASE!! NOW, when I say I'm ready you make it fast because you've only got seconds.<br />
<br />
His ears and throat were both clear.<br />
<br />
Now they want blood work. They can't take him to the floor without it.<br />
<br />
I think they know they're pushing me over the edge.<br />
<br />
We compromised on a cap gas... it's not a needle and drawing of blood but more of a prick and then they squeeze the blood out. Sorry if that's too much detail. I had more faith in that being a success with one jab than an actual attempt at taking blood. <br />
<br />
It was. We even managed to keep Caelan mostly asleep on my lap while it was done shortly after 2:30 in the morning.<br />
<br />
Around three o'clock we make the trip up to the floor. My sincerest apologies to the other children and their parents in our ward room who were disrupted by our arrival at such an awful time.<br />
<br />
Bed is in sight, but not yet. Oh no, now you have to go through it all again!! <br />
<br />
I was happy that they'd pulled some info from our last stay but given that it had been awhile they did have to confirm details. talk talk talk and all I want is sleep sleep sleep... <br />
<br />
Caelan's nurse that night seemed to understand my frustration and her examination of Caelan was done as quickly, as carefully and as kindly as possible.<br />
<br />
She won me over when she made my bed up for me as I was comforting Caelan to sleep and still answering questions.<br />
<br />
Four a.m.Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com0tag:blogger.com,1999:blog-4922765689884407434.post-34103031041088820732014-01-23T21:10:00.000-05:002014-01-23T21:10:02.983-05:00CHEO We arrived at CHEO around one o'clock and went straight to the emergency department. <br />
<br />
We probably waited about twenty minutes in triage for our initial assessment. Not long but it felt like a lifetime... Caelan, feeling unwell, wanted me to hold him, in addition to his suction machine, emergency kit and the back pack I had filled with clothes, food and entertainment necessary for a trip to the emergency room. Felt a bit like a pack mule.<br />
<br />
Immediately upon that initial assessment Caelan starts to get agitated and upset. He's been here before he knows what's happening. He's nobody's fool. Well his O2 sats drop into the low 80s so off to resuscitation we go. Once calmed down his sats are a bit more acceptable in the mid to low 90s. I'm referring to his levels of oxygen saturation, we would love 100, we accept that his norm is more like 97-98. Under 91 is unacceptable and you're put on oxygen.<br />
<br />
Now forgive me because I can't remember the order of things, but going for a chest X-ray to rule out pneumonia was pretty high on the priority list. He also received a ventolin treatment with atrovent added to try and open up his lungs to allow him to breathe easier. Unfortunately this treatment, often used with asthma patients, had little to no effect. They also ran a swab test on his secretions to check for bacterial infections or viruses there.<br />
<br />
The X-rays came back and although there was some fluid in the lungs it was really minimal and no sign of pneumonia. So happy to hear this as it was a major concern. However the swab came back positive for RSV. Ugh. I knew it wasn't good. Heck he'd had shots every month over the cold and flu season for two years to protect him against RSV when he was an infant...<br />
<br />
So what is RSV I ask... Well basically a really bad cold. Respiratory syncytial virus. Bottom line is that it's a virus so no antibiotics, only supportive treatments to help you breath. Oxygen, in combination with ventolin and or epinephrine nebulizers. No guarantee that any of these supportive treatments will help though. Obviously the oxygen does, but I have to tell you even on oxygen, Caelan is still having great difficulty breathing.<br />
<br />
Shortly after getting the results we were moved from the resuscitation bay to an emergency "room"... Here Caelan got a dose of prednisone and <span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969);">he was given three ventolin treatments back to back. While this did increase his secretions and possibly clear him up the effects were very short lived and did nothing for his shallow rapid breathing and nasal flaring that had prompted me to be there in the first place.</span><span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969);"> However they continued to give ventolin treatments every hour for the rest of the night. This was to treat a wheeze they could hear in his lungs. (I was asked repeatedly if he had asthma.)</span><br />
<span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969);"><br /></span>
<span style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969);">Since Caelan had required oxygen to keep his O2 sats in the acceptable range our entire visit, there was little chance of us getting home so it came as no surprise when we were told he was being admitted. The question was where? Was he going to the floor or the ICU?</span>Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com1tag:blogger.com,1999:blog-4922765689884407434.post-54496871652075231552014-01-23T17:07:00.000-05:002014-01-23T17:18:17.541-05:00All good things must come to an endWell it was a good long run but I'm sad to say that Caelan has been admitted to CHEO.<br />
<br />
This illness progressed rather quickly and caught us off guard. Not that you're ever really prepared for a stay here.<br />
<br />
Caelan showed some signs that he wasn't well on Monday, but nothing extreme. He required a little more suctioning at school and seemed a tired that evening. It was Monday though so we didn't really think much of it. It's only in retrospect that I recognize these as signs that something was brewing.<br />
<br />
Tuesday I got a call from Caelan's school nurse. Caelan seemed to be a little out of sorts, more suctioning again and a runny nose. He was still participating, but definitely had a cold. Okay, as long as he's still participating I'm happy to have him at school. However a couple hours later things had become worse. He was done. Exhausted. Glassy eyed. No longer participating and wanting to come home. Ronan and I went to go pick him up. He was quieter than usual and most obviously fighting something.<br />
<br />
We decided to run his overnight feeds at half speed, hoping that he would be able to tolerate it. He did. He was extremely quiet and snuggly Wednesday morning. He was also working very hard at breathing. Nasal flaring and shallow, rapid breathing. Not good. It looked like we needed to start making plans to head to CHEO...<br />
<br />
<br />Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com1tag:blogger.com,1999:blog-4922765689884407434.post-70318066937136575612014-01-20T17:20:00.000-05:002014-01-23T17:30:25.001-05:00Alligator rollsChanging Ronan's diaper is like trying to change an alligator.<br />
<br />
The instant that his back hits the change table he's flipping himself over onto his tummy and quickly getting on all fours. I'm not sure where he thinks he's going to go since there really isn't much room up there. Especially when I've got a death grip on at least one leg.<br />
<br />
I think he's just expressing his intense desire for "independent thinking". If I lay him down he wants to sit up. Naturally.<br />
<br />
The other day we had a bit of a messy change after a series of attempts at "independent thinking" on Ronan's part. This required a full change of clothes, not just the diaper.<br />
<br />
While I tried to regain control all Ronan wanted to do was look out the window.<br />
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At least I have an idea as to where he thinks he's going to now...</div>
<br />Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com1tag:blogger.com,1999:blog-4922765689884407434.post-48624427216744287362014-01-17T10:51:00.000-05:002014-01-21T10:51:52.267-05:00Where is Ronan?<div class="separator" style="clear: both; text-align: center;">
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Oh there you are! </div>
Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com1tag:blogger.com,1999:blog-4922765689884407434.post-25594721885081011752014-01-15T15:46:00.000-05:002014-01-19T15:47:39.719-05:00The joys of owning a vehicleUgh!<br />
<br />
Last week one of the wheels fell off the van. Nobody was hurt and we only caused some minor traffic delays while the van was stuck in the turning lane of a local main road during morning rush hour. We had the van towed to Damian's parents heated garage and we're very lucky that Damian and his dad were able to fix it in a day.<br />
<br />
This week the pipe split on the exhaust. We were driving a very loud "nascar" van for a day. It's since been fixed<br />
<br />
Ugh!<br />
<br />
Afraid of what next week might bring.<br />
<br />
Or maybe the brakes that were done two weeks ago count. Oh, I'm so happy to think that we might have already had a set of three and there isn't anything else to come!! Oh please let it be so!!Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com0tag:blogger.com,1999:blog-4922765689884407434.post-42852707343054922052014-01-14T15:30:00.000-05:002014-01-19T15:30:51.872-05:00new duds<div class="separator" style="clear: both; text-align: center;">
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Caelan sporting his new Dusty Crophopper shirt... </div>
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All handsome and ready to go fly some planes at school...</div>
Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com1tag:blogger.com,1999:blog-4922765689884407434.post-51106092443456175042014-01-13T15:22:00.000-05:002014-01-19T15:24:24.438-05:00Look what my Daddy did to me!?!?!<div class="separator" style="clear: both; text-align: center;">
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At first I thought it was kind of fun...</div>
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Then I thought I could shake them off...</div>
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Then I started to get ticked off!</div>
<br />Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com1tag:blogger.com,1999:blog-4922765689884407434.post-18256578490511410192014-01-10T20:59:00.000-05:002014-01-10T20:59:00.218-05:00Privacy<div class="separator" style="clear: both; text-align: center;">
<a href="http://4.bp.blogspot.com/-CfjDlocUHn4/Usi7VfQaxRI/AAAAAAAAD1o/dh64Zv5IZVg/s1600/jan+006.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://4.bp.blogspot.com/-CfjDlocUHn4/Usi7VfQaxRI/AAAAAAAAD1o/dh64Zv5IZVg/s400/jan+006.JPG" height="400" width="266" /></a></div>
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You didn't want any did you?</div>
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<a href="http://3.bp.blogspot.com/-QK7Bk21Czb4/Usi7ZgBJSfI/AAAAAAAAD1s/HYb3WwlnZSQ/s1600/jan+002.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://3.bp.blogspot.com/-QK7Bk21Czb4/Usi7ZgBJSfI/AAAAAAAAD1s/HYb3WwlnZSQ/s400/jan+002.JPG" height="400" width="266" /></a></div>
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<br />Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com1tag:blogger.com,1999:blog-4922765689884407434.post-67666088374263641882014-01-09T22:04:00.000-05:002014-01-09T22:04:00.197-05:00Baby Giraffe<div class="separator" style="clear: both; text-align: center;">
The other day Caelan came to tell me that Ronan's giraffe had a baby in her tummy.</div>
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<a href="http://1.bp.blogspot.com/-S9TpqcHFDRY/Usi4vr7SNAI/AAAAAAAAD1E/QSH_mpCewyY/s1600/jan+007.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://1.bp.blogspot.com/-S9TpqcHFDRY/Usi4vr7SNAI/AAAAAAAAD1E/QSH_mpCewyY/s320/jan+007.JPG" height="320" width="213" /></a></div>
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Pardon me?</div>
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I needed a second look.</div>
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<a href="http://3.bp.blogspot.com/-9SpkOqERzj8/Usi4vLYMpYI/AAAAAAAAD1A/JxnFDayqPmA/s1600/jan+017.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://3.bp.blogspot.com/-9SpkOqERzj8/Usi4vLYMpYI/AAAAAAAAD1A/JxnFDayqPmA/s320/jan+017.JPG" height="320" width="213" /></a></div>
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oh my.</div>
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The baby was definitely stuck.</div>
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It was a bit of a rough delivery but Sophie and Momma giraffe both seem fine.</div>
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Have I mentioned that Caelan would like to be a "zoo animal doctor" when he grows up?</div>
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<br />Tanyahttp://www.blogger.com/profile/17540457944569036938noreply@blogger.com1